Living with a CHD

For the most part living with my CHD ( congenital heart defect) isnt too bad i get tired alot of the time ( to the point of falling asleep most days for a nana nap) and not been able to keep up with bear running home from school ( to the disgust of most of the other mums – who give me evils) i just cant run. Not only can my heart not keep up.

I also have weak ankles which means i fall over – a lot. I’m in discomfort of some kind all the time, weather its my ribs, my anlke, my back or my knees aching.

Then there is the stroke i had when i was 10. This means my speech isnt the best soo i hate talking – if its just me and my hubby or my best buddy i’m fine i can talk for hours. Put me in a room full of strangers and ill happily not say a word to anyone for hours. I’ve now got to a point where i avoid social situations as much as i can. i find it hard to communicate so i just dont bother.

Me

I was born with Arotic stenosis. Which has been repaied loads Ive had a total of 6 heart operations – 2 via keyhole and 4 open heart ones.

Most of this stuff i can cope with , yes it gets me down somedays. But i always smile and wave because things could be a lot worse.

A few months ago my heart went into overdive and it just wouldnt slow down. Sat on the sofa my heart was doing 150+ . Aftrer been well for so long (11 years ish ) it came as a bit of a shock. This as as we found out was due to scar tissue from the operatoins ive had.

Living with a CHD is sometimes scary and only people who have gone through it willl understand what its like. This will problerly happen again. Then there is the constant risk of endocarditis ( which ive had twice ) Its an infection of the sac that surrounds the heart- anyone can get it but because ive had heart operations im just more supseptible to it.

At times its scary living with a CHD . But at the moment things are OK. Ive got my amazing hubby and my beautiful Bear.

Him & bear

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